Carmela's son Paolo has eb and in Paolo's words 'she has been caring for him all her life'.

Carmela is President of DebRA (SA) and is adamant that more money through fundraising needs to go to Professor Dedee Murrell of NSW for the current research and trials that are in progress.

Roger is an inaugural member of DebRA (SA). He is also the Public Officer for DebRA Australia and was instrumental in the formation of the National Association. Roger is a retired Local Government CEO and has worked tirelessly behind the scenes preparing CDs and DVDs to ensure the history of the organization is well documented.

Roger lives with a mild form of eb and his story appears on our special stories page. His love of yachting and travel with the love of his life, Patsy, ensures that interesting anecdotes are ready to be told and heard by those of us who know and appreciate his charm.

Margaret has been our Patron since the Gossamer Conference in 2003. Margaret is former Miss Australia, author and mother of eight. She is a syndicated columnist in various local newspapers and is a well-respected speaker, life coach and motivator.

Margaret is well-known for her love of cycling which has taken her to many parts of Australia. She has travelled extensively and is simply a delight to have on our team.

Linda is the mother and full-time carer of 20 year old Kate who lives with eb. Linda is one of the initiators of DebRA (SA) and is instrumental in organizing many fundraising events. She has travelled with Kate to Melbourne to meet Rove McMannus who subsequently commentated a DVD on eb which was produced in 2006.

Linda's love of handcrafts and quilting has offered people an opportunity to purchase her work with the proceeds going to DebRA (SA).

Laraine married into a family who had a history of a mild form of eb and has been SA Treasurer since the inception of the Association. She is a wonderful ambassador for DebRA (SA) and spearheads many fundraising and publicity events.

Her favourite pastime (alongside her deep commitment to & well-appreciated role in DebRA SA) is bushwalking and counts her proudest achievement as walking the entire Heysen Trail - a trek of 1200kms from Cape Jervis on the southern tip of SA to Parachilna in the Flinders Ranges in the northern part of the state.

Meredith has been involved in DebRA (SA) since 2005 when she offered to produce a seasonal newsletter to promote the work of the organization. Her work was somewhat curtailed in late 2005-2006 because of treatment for unexpected breast cancer, however now that challenge has been successfully accomplished she has taken on the additional role of promoting the organisation through our own state website.

She was appointed Publicity Officer this year and claims to be wearing her L's at this time: she claims it took her almost a year to learn how to pronounce the organisation's full name!

Karen lives with eb herself and has children who also have the skin condition. She is also a carer to several young people with eb and has accompanied them overseas for trips and conferences. Karen has accumulated an extensive knowledge base on the care of eb people and is widely appreciated for all that she does.

Karen has been instrumental in promoting the organisation of DebRA (SA) and although stepping down from the President's role this year, remains an active contributor to the organization.