Sign our
Guest Book

 

 



DebRA(SA) proudly supported by the Adelaide Crows

 

 


Celebrating National EB Butterfly Day in Adelaide Thursday 27th November 2008

Wings of Hope
Inaugural State Conference

Epidermolysis Bullosa is a genetic skin condition affecting 1:17,000 live births. Wound healing of patients suffering from EB poses a major challenge to their survival, with various degrees of recurrent skin blistering and epidermal detachment from the basement membrane.

The aim of our conference is to bring together patients, carers, nurses, clinicians and researchers in SA and provide an opportunity for everyone to share their knowledge and experience of EB, treatment options, current research initiatives and show support to patients and families with EB. We believe that this event will aid in increasing public awareness while future research focused on development of novel therapies may lead to improved quality of life for patients suffering from EB.

Click here to download your invitation
(see sample below)

 

Our latest member of our sponsorship team for
the Wings of Hope conference is ...

 

 

Working for a life free from pain
Privacy Terms of Service Contact Us
© 2007-2008 DebRA (SA)